Wednesday, August 7, 2013

Follow up on the little boy that hugged Cardinal Burke

A follow up from the picture from yesterday 
Louis (French pronunciation: “loo-ee”) was born in 2006, and on the following day his little body was covered with purple and red blotches that covered his whole body except his belly.

The doctors were baffled and even took pictures to document this apparently very rare occurrence. The colors faded and he seemed fine, though they never fully discovered what caused it. His body did flare up in little hives pretty regularly, but he didn’t seem to mind. And except for a LOT of spitting up, seemed like a normal baby. After all, what baby doesn’t spit up? But it never stopped, even after he began eating solids. To make a long story short, after two years, several misdiagnoses, and many long nights, Louis was diagnosed with Mastocytosis, specifically Urticaria Pigmentosa, which is Mastocytosis in the skin and digestive track.

Mastocytosis is a group of rare disorders of both children and adults caused by the presence of too many mast cells (mastocytes) and CD34+ mast cell precursors in a person’s body which could be life threatening and for which there is no known cure.”
continue at Nun Speak

He comes from a great Catholic family.  Let's all say a prayer for young Louis, the request in the linked post is this:

If you feel inclined, please join us in praying for healing for Louis through the intercession of Blessed John Paul II.

4 comments:

  1. Thanks Matt! The above information is what we knew at that time... since moving up here, he's been correctly diagnosed with a different rare disease... all the details are recorded on his caringbridge site: http://www.caringbridge.org/visit/louisfm

    God Bless,

    Pete

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    Replies
    1. I should have also mentioned that Fr. Sam Martin is his Godfather!

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  2. I just updated his Caringbridge site today - we would appreciate prayers for our Louis!
    - Louis' mom :-)
    http://www.caringbridge.org/visit/louisfm/journal

    ReplyDelete

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